California State Resources

State Agencies and Organizations

United States Senators
Honorable Dianne Feinstein (D)
331 Hart Senate Office Building
Washington, DC 20510
(202) 224-3841
(202) 228-3954 (Fax)
E-mail Web Form: http://feinstein.senate.gov/email.html
Web: http://feinstein.senate.gov

Honorable Barbara Boxer (D)
112 Hart Senate Office Building
Washington, DC 20510
(202) 224-3553
(202) 228-0026 (Fax)
E-mail Web Form: http://boxer.senate.gov/contact
Web: http://boxer.senate.gov

United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House's Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).

Governor
Honorable Arnold Schwarzenegger
State Capitol Building
Sacramento, CA 95814
(916) 445-2841
(916) 445-4633 (fax)
E-mail: governor@governor.ca.gov
Web: www.governor.ca.gov/state/govsite/gov_homepage.jsp

Official State Web Site
Web: www.state.ca.us/state/portal/myca_homepage.jsp

State Department of Education: Special Education
Alice Parker, Director
Special Education Division
Department of Education
1430 N Street, 2nd Floor
Sacramento, CA 95814
(916) 445-4602
Web: www.cde.ca.gov/spbranch/sed/

State Coordinator for NCLB (No Child Left Behind)
Camille Maben, Strategic Advisor (General Education)
California Department of Education
1430 N Street
Sacramento, CA 95814
(916) 319-0582
E-mail: cmaben@cde.ca.gov
Web: www.cde.ca.gov/pr/nclb/programs.html

Georgianne Knight, Consultant
Special Education Division
California Department of Education
1430 N Street
Sacramento, CA 95814
(916) 327-0844
E-mail: gknight@cde.ca.gov
Web: www.cde.ca.gov/pr/nclb/programs.html

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Rick Ingraham, Part C Coordinator
Children and Family Services Branch
Department of Developmental Services
1600 9th Street, Room 330, MS 3-8
Sacramento, CA 95814
(916) 654-2773
Web: www.dds.ca.gov

Programs for Children with Disabilities: Ages 3 through 5
Melody James, Interagency Liaison
Special Education Division
Administrative Services Unit
Department of Education
1430 N Street, Suite 530
Sacramento, CA 95814
(916) 322-2235
E-mail: mjames@cde.ca.gov

State Vocational Rehabilitation Agency
Catherine Campisi, Director
Department of Rehabilitation
2000 Evergreen Street
Sacramento, CA 95815-3832
(916) 263-8981; (916) 263-7477 (TTY)
Web: www.dor.ca.gov

Coordinator for Transition Services
Robert Snowden, Coordinator
Transition Services and Work Ability
Special Education Division
California Department of Education
Downtown Plaza
515 L Street, Room 270
Sacramento, CA 95814
E-mail: bsnowden@cde.ca.gov

Office of State Coordinator of Vocational Education for Students with Disabilities
Patrick Ainsworth, Director
High School Leadership Division
California Department of Education
1430 N Street, Suite 4503
Sacramento, CA 95814
(916) 445-2652
Web: www.cde.ca.gov/shsd/

State Mental Health Agency
Stephen W. Mayberg, Ph.D, Director
Department of Mental Health
1600 9th Street, Room 151
Sacramento, CA 95814
(916) 654-2309
Web: www.dmh.ca.gov

State Mental Health Representative for Children and Youth
Dave Neilsen, Chief
Children and Family Services
California Department of Mental Health
1600 9th Street, Room 100
Sacramento, CA 95814
(916) 654-2952
E-mail: dneilsen@dmhhq.state.ca.us
Web: www.dmh.cahwnet.gov

State Mental Retardation Program
Clifford Allenby, Director
Department of Developmental Services
Health and Human Services Agency
1600 9th Street, Room 240
Sacramento, CA 95814
(916) 654-1897
E-mail: callenby@dds.ca.gov
Web: www.dds.ca.gov

Developmental Disabilities Planning Council
Judy McDonald, Director
State Council on Developmental Disabilities
2000 O Street, Room 100
Sacramento, CA 95814
(916) 322-8481
Web: www.scdd.ca.gov

Protection and Advocacy Agency
Catherine Blakemore, Executive Director
Protection and Advocacy, Inc.
100 Howe Avenue, Suite 185N
Sacramento, CA 95825-8219
(916) 488-9950; (800) 776-5746 (In CA)
E-mail: legalmail@pai-ca.org
Web: www.pai-ca.org

Client Assistance Program
Sheila Conlon Mentkowski, Chief
Client Assistance Program
Department of Rehabilitation
2000 Evergreen Street, 2nd Floor
Sacramento, CA 95815
(916) 263-7372; (800) 952-5544
(800) 598-3273 (TTY)
E-mail: smentkow@rehab.cahwnet.gov
Web: www.dor.ca.gov

Programs for Children with Special Health Care Needs
Maridee Gregory, Chief
State Children's Medical Services Branch
Department of Health Services
P.O. Box 942732
Sacramento, CA 94234-7320
(916) 327-1400
E-mail: mgregory@dhs.ca.gov

State CHIP Program
(health care for low-income uninsured children)
Healthy Families Program
P.O. Box 138005
Sacramento, CA 95813-8005
(800) 880-5305 (in CA)
Web: www.healthyfamilies.ca.gov/

Programs for Children and Youth who are Blind or Visually Impaired
Tom Lee, Chief
State Office of Services to the Blind
California Department of Social Services
744 P Street, MS 6-94
Sacramento, CA 95814
(916) 653-8320
E-mail: BlindAccess@dss.ca.gov
Web: www.dss.cahwnet.gov/cdssweb/BlindServi_187.htm

Programs for Children and Youth who are Deaf or Hard of Hearing
Lisa Bandaccari, Chief
State Office of Deaf Access
Department of Social Services
744 P Street, MS 6-91
Sacramento, CA 95814
(916) 653-8320; (916) 653-7651 (TTY)
E-mail: deaf.access@dss.ca.gov
Web: www.dss.cahwnet.gov/cdssweb/officeofde_189.htm

Programs for Children and Youth who are Deaf-Blind
Hellen Keller National Center for Deaf-Blind Youth & Adults
6160 Cornerstone Court, East
San Diego, CA 92120-3710
(858) 623-2777; (800) 432-7619 (V/TTY)
(858) 646-0784 (TTY)
Web: www.hellenkeller.org/national

Regional ADA & IT Technical Assistance Center
Erica C. Jones, Director
Pacific Disability and Business Technical Assistance Center
Public Health Institute
555 12th Street, Suite 1030
Oakland, CA 94607-4046
(510) 285-5600 (V/TTY); (800) 949-4232 (V/TTY)
E-mail: adatech@pdbtac.com
Web: www.pacdbtac.org

University Centers for Excellence in Developmental Disabilities
Olivia Raynor, Ph.D., OTR and
Andrew Russell, M.D., Co-Directors
Tarjan Center for Developmental Disabilities at UCLA
University of California, Los Angeles
300 UCLA Medical Plaza
Los Angeles, CA 90024-6967
(310) 825-0170
E-mail: oraynor@mednet.ucla.edu
E-mail: arussell@mednet.ucla.edu
Web: www.tarjancenter.ucla.edu

Robert A. Jacobs, M.D., Director
University of Southern California
University Center for Excellence in Developmental Disabilities
Childrens Hospital Los Angeles
5000 Sunset Boulevard
P. O. Box 54700, MS #53
Los Angeles, CA 90054-0700
(323) 669-2300
E-mail: rjacobs@chla.usc.edu
Web: www.uscuap.org

Technology-Related Assistance
Kathy Mowers-Moore, Project Coordinator
California Assistive Technology System
Department of Rehabilitation
2000 Evergreen Street
Sacramento, CA 95815
(916) 263-8676 (V/TTY)
Web: www.dor.ca.gov

State Mediation System
Karen Johnson, ADR Projects Coordinator
Department of Education
Special Education Division
1430 N Street, 2nd Floor
Sacramento, CA 95814
(916) 323-2196
E-mail: kjohnson@cde.ca.gov
Web: www.cde.ca.gov/spbranch/sed/cmm/ca_adr.htm

Special Format Library
Dr. Henry C. Chang, Librarian
Braille Institute Library Services
741 N. Vermont Avenue
Los Angeles, CA 90029-3594
(323) 663-1111, ext. 500; (800) 808-2555
(323) 660-3880 (TTY)
E-mail: bils@braillelibrary.org
Web: www.braillelibrary.org/

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464
(484) 945-2101
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Gil Johnson, Director
American Foundation for the Blind-West
111 Pine Street, Suite 725
San Francisco, CA 94111
(415) 392-4845
E-mail: sanfran@afb.net
Web: www.afb.org

LaDonna Ringering, Ph.D., Director
The Center for the Partially Sighted
12301 Wilshire Boulevard, Suite 600
Los Angeles, CA 90025
(310) 458-3501; (800) 481-EYES (3937)
E-mail: info@low-vision.org
Web: www.low-vision.org

Brain Injury
Brain Injury Association of California, Inc. (BIACA)
P.O. Box 1410
Mill Valley, CA 94942-1410
(415) 383-3080; (888) 662-4222
E-mail: info@biaca.org
Web: www.biaca.org

Cerebral Palsy
Philip Ksarjian, Executive Director
United Cerebral Palsy of Greater Sacramento
191 Lathrop Way, Suite N
Sacramento, CA 95815
(916) 565-7700
E-mail: ucp@ucpsacto.org
Web: www.ucpa.org

Down Syndrome
Joyce Clark, Program Coordinator
Down Syndrome Association of San Diego
c/o The Exceptional Family Resource Center
9245 Sky Park Court, Suite 130
San Diego, CA 92123
(619) 276-4494
E-mail: jclark@projects.sdsu.edu

Epilepsy
Kathy D. West, Executive Director
Epilepsy Foundation of San Diego County
2055 El Cajon Blvd
San Diego, CA 92104
(619) 296-0161
E-mail: info@epilepsysandiego.org
Web: www.epilepsysandiego.org

Learning Disabilities
Betty Schiemenz, Administrative Director
Learning Disabilities Association of California
P.O. Box 601067
Sacramento, CA 95860-1067
(916) 725-7881; (866) 532-6322
E-mail: office@LDACA.org
Web: www.LDACA.org

Mental Health
Rusty Selix, Executive Director
Mental Health Association in California
1127 11th Street, Suite 925
Sacramento, CA 95814
(916) 557-1167
E-mail: rselix@mhac.org
Web: www.mhac.org

Jennifer Clancy, Executive Director
United Advocates for Children of California
1401 El Camino Avenue, Suite 340
Sacramento, CA 95815-2700
(916) 643-1530
E-mail: cdalen@uacc4families.org
Web: www.uacc4families.org

Grace McAndrews, Executive Director
NAMI California
1111 Howe Avenue, Suite 475
Sacramento, CA 95825
(916) 567-0163
E-mail: Nami@namicalifornia.org
Web: www.NAMICalifornia.org

Mental Retardation
Laurie Shields, Executive Director
Arc California
1225 Eighth Street, Suite 590
Sacramento, CA 95814
(916) 552-6619

Speech and Hearing
Robert Powell, J.D.
California Speech-Language-Hearing Association
825 University Avenue
Sacramento, CA 95825
(916) 921-1568
E-mail: CSHA@CSHA.org
Web: www.CSHA.org

Spina Bifida
Randy Burke, President
Spina Bifida Association of the Bay Area
775 Brookside Drive
Danville, CA 94526
(925) 838-9947
E-mail: dawn_graeme@sbcglobal.net

Spina Bifida Association of Greater San Diego
P.O. Box 232272
San Diego, CA 92193-2272
(619) 491-9018
E-mail: sbaofgsd@hotmail.com

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Susan Henderson, Director
Disability Rights Education and Defense Fund, Inc. (DREDF)
2212 6th Street
Berkeley, CA 94710
(510) 644-2555; (800) 348-4232
E-mail: dredf@dredf.org
Web: www.dredf.org

Lori Twist, Program Manager
Exceptional Family Support
Education and Advocacy Center
6319A Skyway
Paradise, CA 95969
(530) 876-8321; (888) 263-1311
E-mail: sea@sea-center.org
Web: www.sea-center.org

Stacey B. Thacker, Director
Exceptional Parents Unlimited
4440 N. 1st Street
Fresno, CA 93726
(559) 229-2000
E-mail: sthacker@exceptionalparents.org
Web: www.exceptionalparents.org

Alan Kerzin, Executive Director
MATRIX, A Parent Network and Resource Center
94 Galli Drive, Suite C
Novato, CA 94949
(415) 884-3535; (800) 578-2592
E-mail: matrix@matrixparents.org
Web: www.matrixparents.org

Mary Ellen Peterson, Chief Executive Officer
Parents Helping Parents of Santa Clara
3041 Olcott Street
Santa Clara, CA 95054-3222
(408) 727-5775; (408) 727-7655 (TTY)
E-mail: info@php.com
Web: www.php.com

Lois Jones, Director
Parents Helping Parents -- San Francisco
594 Monterey Boulevard
San Francisco, CA 94127-2416
(415) 841-8820
E-mail: sfphp@earthlink.net
Web: www.sfphp.com

Juno Duenas, Executive Director
Support for Families of Children with Disabilities
2601 Mission Street, Suite 606
San Francisco, CA 94110-3111
(415) 282-7494
E-mail: info@supportforfamilies.org
Web: www.supportforfamilies.org

Marta Anchondo, Executive Director
Brenda Smith, Deputy Director
Team of Advocates for Special Kids (TASK)
100 W. Cerritos Avenue
Anaheim, CA 92805
(714) 533-8275; (866) 828-8275
E-mail: taskca@yahoo.com
Web: www.taskca.org

Leah Knight, Director
Team of Advocates for Special Kids (TASK), San Diego
4550 Kearny Villa Road, Suite 102
San Diego, CA 92123
(858) 874-2386; (858) 874-2387
E-mail: taskd1@aol.com
Web: www.taskca.org

Community Parent Resource Center
(serving San Diego and Imperial County)
Sherry Torok, Executive Director
Exceptional Family Resource Center
9245 Sky Park Court, Suite 130
San Diego, CA 92123
(619) 594-7416; (800) 281-8252
E-mail: efrc@projects.sdsu.edu
Web: http://edweb.sdsu.edu/efrc

(Serving most of LA County)
Theresa Cooper, Executive Director
Loving Your Disabled Child (LYDC)
4528 Crenshaw Boulevard
Los Angeles, CA 90043
(323) 299-2925
E-mail: info@lydc.org
Web: www.lydc.org

(Serving Watts County)
Alice Harris, Executive Director
Parents of Watts
10828 Lou Dillon Avenue
Los Angeles, CA 90059
(323) 566-7556
E-mail: egertonf@hotmail.com

Diana Lee, Director
Sickle Cell Community Health Network
Oakland PEACE CPRC
1515 Webster
Oakland, CA 94612
(877) 726-2372
E-mail: dianavision@hotmail.com

(Serving Orange and Los Angeles County)
Hung Nguyen, President
Vietnamese Parents of Disabled Children Association, Inc.
7526 Syracuse Avenue
Stanton, CA 90680
(310) 370-6704
E-mail: contact@vpdca.org
Web: http://vpdca.org/

Parent Teacher Association (PTA)
Jan Harp Domene, President
California State PTA
930 Georgia Street
P.O. Box 15015
Los Angeles, CA 90015
(213) 620-1100
E-mail: info@capta.org
Web: www.capta.org

Other Disability Organizations

Suzanne Fisher, Executive Director
California Association of School Psychologists
1400 K Street, Suite 311
Sacramento, CA 95814
(916) 444-1595
E-mail: memberservices@casponline.org
Web: www.casponline.org

Michael Pelfini, President and CEO
Easter Seals Bay Area
180 Grand Avenue, Suite 300
Oakland, CA 94612
(510) 835-2131, ext. 126
E-mail: mpelfini@esba.org
Web: www.eastersealsbayarea.org

Ann Cirimele, Executive Director
Family Resource Network
5250 Claremont Avenue, Suite 239
Stockton, CA 95207
(209) 472-3674; (800) 847-3030
Email: frnfamilies@aol.com

Leah Goodwin, President
VSA (Very Special Arts) California
c/o Ability First
3770 E. Willow Street
Long Beach, CA 90815
(714) 607-8867
E-mail: president@vsaca.com
Web: www.vsaca.org

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contact:
National Council on Independent Living
1916 Wilson Boulevard, Suite 209
Arlington, VA 22201
(703) 525-3406; (703) 525-4153 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

© 2003