State Agencies and Organizations

United States Senators
Honorable Richard J. Durbin (D)
332 Dirksen Senate Office Building
Washington, DC 20510
(202) 224-2152
(202) 228-0400 (Fax)
E-mail: dick@durbin.senate.gov
Web: http://durbin.senate.gov

Honorable Peter G. Fitzgerald (R)
555 Dirksen Senate Office Building
Washington, DC 20510
(202) 224-2854
(202) 228-5786 (Fax)
E-mail Web Form: fitzgerald.senate.gov/contact_email.htm
Web: http://fitzgerald.senate.gov

United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House's Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).

Governor
Honorable Rod R. Blagojevich
State Capitol
207 Statehouse
Springfield, IL 62706
(217) 782-0244 (V/TTY)
E-mail: governor@state.il.us
Web: www.illinois.gov/

Official State Web Site
Web: www100.state.il.us/

State Department of Education: Special Education
Dr. Christopher Koch, Director
Department of Special Education
Illinois State Board of Education
100 N. First Street, N-243
Springfield, IL 62777-0001
(217) 782-4870
Web: www.isbe.net/spec-ed/

State Coordinator for NCLB (No Child Left Behind)
Gail Lieberman, Federal Liaison
Illinois State Board of Education
100 N. 1st Street
Springfield, IL 62777
(217) 782-5053
E-mail: glieberm@isbe.ne
Web: www.isbe.net

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Janet D. Gully, Bureau Chief
Bureau of Early Intervention
Department of Human Services
P.O. Box 19429
Springfield, IL 62794-9429
(217) 782-1981; (800) 323-4769 (in IL only)
E-mail: DHSVR50@dhs.state.il.us
Web: www.state.il.us/agency/dhs/eisnp.html

Programs for Children with Disabilities: Ages 3 through 5
Kay Henderson, Division Administrator
Division of Early Childhood Education
100 N. First Street, C-428
Springfield, IL 62777-0001
(217) 524-4835
E-mail: hhenders@isbe.net
Web: www.isbe.net

State Vocational Rehabilitation Agency
Kris Smith, Acting Associate Director
Office of Rehabilitation Services
Department of Human Services
100 S. Grand Avenue, East
Springfield, IL 62762
(217) 524-7551 (V/TTY); (800) 641-3929 (V/TTY)
E-mail: ilvr@rehabnetwork.org
Web: www.state.il.us/agency/dhs/

Coordinator for Transition Services
Susan Walter, Training Coordinator
Transition Outreach Training for Adult Living
10 Meadowlark Lane
Highland, IL 62249
(618) 651-9028
E-mail: smwalter@charter.net
Web: www.isbe.net

Office of State Coordinator of Vocational Education for Students with Disabilities
Cindy Zumwalt, Special Populations Coordinator
Illinois State Board of Education
100 N. First Street
Springfield, IL 62777-0001
(217) 782-0738
E-mail: czumwalt@isbe.net
Web: www.isbe.net

State Mental Health Agency
Christopher Fichtener, M.D., Director
Division of Mental Health
Department of Human Services
100 S. Grand Avenue, East, Harris II, 2nd Floor
Springfield, IL 62762
(217) 785-6023; (800) 843-6154 (Hotline)
(800) 447-6404 (TTY)
E-mail: dhsc1655@dhs.state.il.us
Web: www.dhs.state.il.us/mhdd/mh

State Mental Health Representative for Children and Youth
Christopher Fichtener, M.D., Director
Division of Mental Health
Department of Human Services
100 S. Grand Avenue, East, Harris II, 2nd Floor
Springfield, IL 62762
(217) 785-6023; (800) 843-6154 (Hotline)
(800) 447-6404 (TTY)
E-mail: dhsc1655@dhs.state.il.us
Web: www.dhs.state.il.us/mhdd/mh

State Mental Retardation Program
Geoff Obrzut, Director
Division of Developmental Disabilities
Department of Human Services
100 S. Grand Avenue, East, 2nd Floor
Springfield, IL 62762
(217) 782-2442
Web: www.state.il.us/agency/dhs

State Developmental Disabilities Council
Sheila T. Romano, Executive Director
Illinois Council on Developmental Disabilities
830 S. Spring Street
Springfield, IL 62704
(217) 782-9696 (V/TTY)
Web: www.state.il.us/agency/icdd/

Protection and Advocacy Agency
Zena Naiditch, CEO/President
Equip for Equality, Inc.
11 E. Adams, Suite 1200
Chicago, IL 60603
(312) 341-0022; (800) 537-2632 (V)
(800) 610-2779 (TTY)
E-mail: contactus@equipforequality.org
Web: www.equipforequality.org

Client Assistance Program
Cathy Meadows, Acting Manager
Illinois Client Assistance Program
100 N. First Street, 1st Floor West
Springfield, IL 62702-5197
(217) 782-5374 (V/TTY)

Programs for Children with Special Health Care Needs
Charles N. Onufer, Director
Division of Specialized Care for Children
University of Illinois at Chicago
P.O. Box 19481
2815 W. Washington, Suite 300
Springfield, IL 62794-9481
(217) 793-2340
E-mail: cnonufer@uic.edu
Web: www.uic.edu/hsc/dscc/

State CHIP Program
(health care for low-income uninsured children)
Illinois KidCare
Illinois Department of Public Aid
201 S. Grand Avenue East
Springfield, IL 62753-0002
(866) 468-7543; (877) 204-1012 (TTY)
Web: www.kidcareillinois.com/

Programs for Children and Youth who are Deaf or Hard of Hearing, or Deaf-Blind
Joseph Parvis, Specialist
Division of Services for Persons who are Deaf or Hard of Hearing
Office of Rehabilitation Services
Department of Human Services
100 W. Randolph Street, Suite 8-100
Chicago, IL 60601
(312) 814-2939; (312) 814-3040 (TTY)
Web: www.dhs.state.il.us/ors/sdhh/

Programs for Children and Youth who are Blind or Visually Impaired
Bettye Odem-Davis, Bureau Chief
Bureau of the Blind
Office of Rehabilitation Services
Department of Human Services
100 W. Randolph Street, Suite 8-100
Chicago, IL 60601
(312) 814-3323
Web: www.dhs.state.il.us/ors/bbs/

State Education Agency Rural Representative
Leah Covey, Principle Performance Consultant
Department of Rural Education
Southern Illinois Regional Office
Illinois State Board of Education
123 S. Tenth Street, Suite 200
Mt. Vernon, IL 62864
(618) 244-8383
Web: www.isbe.state.il.us

Regional ADA & IT Technical Assistance Center
Robin Jones, Project Director
Great Lakes ADA and Accessible IT Center
University of Illinois/Chicago
Institute on Disability and Human Development
1640 W. Roosevelt Road (MC/626)
Chicago, IL 60608-6902
(312) 413-1407 (V/TTY); (800) 949-4232 (V/TTY)
E-mail: gldbtac@uic.edu
Web: www.adagreatlakes.org

University Centers for Excellence in Developmental Disabilities
Glen T. Fujiura, Director
Institute on Disability and Human Development
Department of Disability and Human Development
University of Illinois at Chicago
1640 W. Roosevelt Road
Chicago, IL 60608
(312) 413-1647 (V); (312) 413-0453 (TTY)
E-mail: fujiura@uic.edu

Technology-Related Assistance
Wilhelmina Gunther, Executive Director
Illinois Assistive Technology Project
1 W. Old State Capitol Plaza, Suite 100
Springfield, IL 62701
(217) 522-7985(V/TTY)
(800) 852-5110 (V/TTY, in IL only)
E-mail: wgunther@iltech.org
Web: www.iltech.org

State Mediation System
Sherry Colegrove, Coordinator
Illinois State Board of Education
Division of Special Education Services
100 N. First Street, N-253
Springfield, IL 62777
(217) 782-5589
E-mail: scolegro@isbe.net
Web: www.isbe.net/spec-ed

Special Format Library
Sharon Ruda, Librarian
Illinois State Library
Talking Book and Braille Service
400 E. Washington
Springfield, IL 62701
(217) 782-9435; (800) 665-5576 ext. 5
(217) 558-0905 (TTY)
E-mail: sruda@ilsos.net
Web: www.cyberdriveillinois.com/library/isl/bph/bph.html

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CH.A.D.D)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464
(484) 945-2101
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Kathy Gould, Project Director
Alyson Beytien, Assistant Project Director
Illinois Autism/PDD Training and Technical Assistance Project
1301 W. Cossitt Avenue
La Grange, IL 60525
(708) 354-5730
E-mail: kathygould@illinoisautismproject.org
E-mail: alysonbeytien@illinoisautismproject.org
Web: www.illinoisautismproject.org

Blind/Visual Impairments
Jay Stiteley, Director
American Foundation for the Blind-Midwest
401 N. Michigan Avenue, Suite 350
Chicago, IL 60611
(312) 396-4420
E-mail: chicago@afb.net
Web: www.afb.org

Brain Injury
Philicia L. Deckard, Executive Director
Brain Injury Association of Illinois
1127 South Mannheim Road, Suite 213
Westchester, IL 60154
(708) 344-4646; (800) 699-6443 (in IL only)
E-mail: info@biail.org
Web: www.BIAUSA.org/illinois/bia.htm

Cerebral Palsy
Don Moss, Executive Director
United Cerebral Palsy of Illinois
310 E. Adams
Springfield, IL 62701
(217) 528-9681
E-mail: DMOSSINC@aol.com

Epilepsy
Phillip Gattone, President/CEO
Epilepsy Foundation of Greater Chicago
20 E. Jackson Boulevard, Suite 1300
Chicago, IL 60604
(312) 939-8622; (800) 273-6027
(312) 939-1117 (TTY)
E-mail: info@epilepsychicago.org
Web: www.epilepsychicago.org

Epilepsy Resource Center
(serving central Illinois)
1315 W. Lawrence Avenue
Springfield, IL 62704
(217) 726-1839 (V/TTY); (800) 800-6401
E-mail: epilepsy@spfldsparc.org

Learning Disabilities
Beverly Johns, President
Learning Disabilities Association of Illinois
10101 S. Roberts Road, Suite 205
Palos Hills, IL 60465
(708) 430-7532
E-mail: LDAofIL@ameritech.net
Web: www.ldaamerica.org

Carolyn Swallow, Ph.D., Executive Director
Illinois Branch of the International Dyslexia Association
751 Roosevelt Road, Suite 301
Glen Ellyn, IL 60137
(630) 469-6900
E-mail: ilbranch_ida@ameritech.net
Web: www.interdys.org

Mental Health
Jan Holcomb, Chief Executive Officer
Mental Health Association in Illinois
188 W. Randolph Street, Suite 2225
Chicago, IL 60601
(312) 368-9070
E-mail: jholcomb@mhai.org
Web: www.mhai.org

Holly McCaffrey, Acting Executive Director
NAMI Illinois
218 W. Lawrence
Springfield, IL 62704
(217) 522-1403; (800) 346-4572 (In IL only)
E-mail: namiil@sbcglobal.net
Email: hollymac@sbcglobal.net
Web: http://il.nami.org

Mental Retardation/Developmental Disabilities
Tony Paulauski, Executive Director
The Arc of Illinois
18207-A Dixie Highway
Homewood, IL 60430
(708) 206-1930
E-mail: tony@thearcofil.org
Web: www.thearcofil.org

Speech And Hearing
Cynthia Keillor, Executive Director
Illinois Speech-Language-Hearing Association
230 E. Ohio Street, Suite 400
Chicago, IL 60611-3265
(312) 644-0828, ext. 2210
E-mail: ckeillor@bostrom.com
Web: www.ishail.org

Spina Bifida
Ann Walsh Johnson, Executive Director
Illinois Spina Bifida Association
3080 Ogden Avenue, Suite 103
Lisle, IL 60532
(630) 637-1050; (773) 581-2426
(800) 969-4722
E-mail: ILSBA1@aol.com
Web: www.illinoisspinabifidaassociation.com

Spinal Cord Injury
Mercedes Rauen, Executive Director
Spinal Cord Injury Association of Illinois
1032 S. La Grange Road
LaGrange, IL 60525
(708) 352-6223; (877) 373-0301
E-mail: SCIInjury@aol.com
Web: www.sci-illinois.org

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Charlotte Des Jardins, Director
Family Resource Center on Disabilities
20 E. Jackson Boulevard, Room 300
Chicago, IL 60604
(312) 939-3513; (312) 939-3519 (TTY)
(800) 952-4199 (In IL)
E-mail: frcdptiil@ameritech.net
Web: www.frcd.org

Donald Moore, Executive Director
Designs for Change
29 E. Madison, Suite 950
Chicago, IL 60602-4404
(312) 236-7252; (312) 236-7944 (TTY)
(800) 851-8728
E-mail: info@designsforchange.org
Web: www.designsforchange.org

Debbie Einhorn, Program Director
Family Matters
2502 S. Veterans Drive
Effingham, IL 62401
(217) 347-0880; (217) 347-5428 (V/TTY)
(866) 436-7842
E-mail: info@fmptic.org
Web: www.fmptic.org

Parent-To-Parent
Charlotte Des Jardins, Executive Director
Family Resource Center on Disabilities
20 E. Jackson Boulevard, Suite 300
Chicago, IL 60604
(312) 939-3513; (312) 939-3519 (TTY)
(800) 952-4199 (In IL)
E-mail: frcdptiil@ameritech.net
Web: www.frcd.org

Charlotte Cronin, Executive Director
Family Support Network of Illinois
5739 W. Martindale Lane
Peoria, IL 61615-9669
(309) 693-8981
E-mail: fsn@familysupportnetwork.org
Web: www.familysupportnetwork.org/

Parent Teacher Association (PTA)
Sarah Williamson, President
Illinois Congress of Parents and Teachers
901 S. Spring Street
Springfield, IL 62704-2790
(217) 528-9617; (800) 877-9617
E-mail: il_office@pta.org

Other Disability Organizations

Pathways Awarness Foundation
150 N. Michigan Avenue, Suite 2100
Chicago, IL 60601
(800) 955-2445; (312) 236-7411 (TTY)
E-mail: friends@pathwaysawareness.org
Web: www.pathwaysawareness.org

Jo Holzer, Executive Director
Council for Disability Rights
205 W. Randolph, Suite 1645
Chicago, IL 60606-1892
(312) 444-9484; (312) 444-1967 (TTY)
E-mail: cdrights@interaccess.com
Web: www.disabilityrights.org

Amy J. Serpe, President
VSA arts of Chicago
Apparel Center
350 N. Orleans, Suite 1191
Chicago, IL 60654
(312) 527-2620; (800) 526-0844 (TTY)
E-mail: serpeamy@aol.com

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contact:
National Council on Independent Living
1916 Wilson Boulevard, Suite 209
Arlington, VA 22201
(703) 525-3406; (703) 525-4153 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

© 2003