Silvia Lawniczak is a writer, Web Developer, author of a biography in Italian, a translator, but first and foremost a mom. Her special need child, her much loved Nicky, suffers from the Recessive Dystrophic form of Epidermolysis Bullosa. His skin is so fragile, the minumum scratch will result in a 2nd degree burn like wound. She is currently writing a book about her experiences in an effort to help others. She has also lost a child at birth from this condition.
http://www.sleepingangel.comOn most days the furthest thing from my mind is my child being different from any other. We laugh, play together, even bandage changes are so routine it feels like a 'normal' thing to do. I don't... [more]